Wednesday, May 9, 2012

Rainy Day's

Rain has a funny way of messing with our heads. Not only is it not convenient when you have places to go but it's dismal and has a sedating affect.  Today was a really rainy day so I just assumed it would be a day full of gloom and sadness. 

We started out the morning by visiting one of our favorite Pediatrician's, Dr. Kaloji. She confirmed that Reese did in fact have a severe case of Coxsackie Virus or better known as Hand/Foot/Mouth disease. I will spare you from pictures but lets just say it isn't pretty. Thankfully, I believe it bothers me more than it does Reese. Other than being a little fussy, loss of appetite, and extra sleepy, she hasn't been affected too much by this virus. Now, we just have to let it run it's course and hopefully we will see some improvement in the new few days. 

So, after calling my OB's office to let them know about Reese's virus, they had me come in to get some blood work done to see specifically what I have been exposed to. During that quick lab visit, I missed a very important call. A call I've been waiting to get since the day I had my blood drawn last. The geneticist from Maternal Fetal Medicine was calling to give us our results. 

Of course, it's still pouring down the rain, but thankfully for blue tooth I didn't have to use my hands to call her back. She started the conversation by saying, "I've got good news for you." (in my mind,  "Thank you sweet Jesus!") The tests came back negative. They show a normal blood count, chromosome count and you have a 99% chance that you will not have a baby with Trisomy 21, 99% chance that the baby will not have Trisomy 18, and a 92% chance that the baby will not have Trisomy 13." 

I know in my heart that this baby is healthy but to be able to hear it confirmed by this cutting edge, technically advanced test was A-M-A-Z-I-N-G! I just can't thank God enough for hearing our prayers, your prayers, every one's prayers. There is such power in prayer and claiming certain things in Jesus name.   Although we would have been fine with whatever the results, we have a desire to experience what most people experience and that is a 100% healthy child. We feel like we have so much to learn and do for both our girls that it would be nice to have a child that won't have those same needs. Each child, no matter what, will face their challenges, their struggles, will have strengths and weaknesses- I understand that. However, I just don't know if we could emotionally handle one more surprise, one more diagnosis, or one more close call. That is me being completely honest and real. 

People say to me all the time you are an amazing mom or they say I'm not sure I could do what you do. Well there are certainly days where I don't feel like an amazing mom or I question whether or not I can handle the responsibilities given to me. I certainly have my rainy days where gloom and sadness suffocate me. Where I feel sorry for my situation and wonder why God chose me to raise two special needs children. Then I think back to the days where I would be alone in prayer and just beg the Lord to let me one day be a parent.  To feel the unconditional love of a child and love them unconditionally in return. Then the clouds start to disappear and I see the sun peaking through. I know I'm not alone and because I alone could not be the type of parent I need to be. It's only by God's grace and His strength that I'm able to get by, one day at a time , one challenge at a time. Parenthood is serious business, it has it's ups and downs but we all do the best with what we have and pray that God fills in the gaps and picks up the dropped pieces and puts them back.  Knowing that allows me to face these rainy days because he always offers a glimpse of sunshine in the midst of it. 

Thank you Lord for my glimpse of sunshine today...Praise you for hearing our prayers and our hearts desire. We pray for continued health and development for little "buddy" and are looking forward to the day he/she joins our imperfect but loving family! Amen

Tuesday, May 8, 2012

The Virus

I feel like half of my blogs are about illnesses or plague's that have hit our household these. I guess we are just walking through a season right now. But let me tell you, I'm ready for a new season.

This weekend Reese had a low-grade fever. It broke after 24 hours and we thought all was good.

Until.......around 4:00 pm yesterday (yes it happened that quick) she broke out with a rash all over her body. It started on her legs and slowly spread to her arms, diaper area, back, and chest. I spoke with my sister, who's daughter had the same thing going on just a few days earlier and said she was feeling and looking much better after 24 hours. So instead of worrying. I gave her some benydryl and put her to bed.

This morning the rash had gotten better in some places but started to manifest on her hands and feet. I called the Pediatrician and spoke with a nurse who assured me, after hearing her symptoms, that it is just a virus and there is nothing they can do to treat it. We just have to ride it out.

I wasn't too concerned at this point because Reese was her cheerful self, however, she wasn't interested in eating and from time to time would burst out in tears for no apparent reason. My mom, bless her heart, who helps me daily with the girls so that I can work from home, was unable to soothe her. Finally after two attempts, I was able to get her down for an early nap.

Now Reese has never been a great napper. Grace, she use to nap 3-4 hours at a time when she was younger. But we are lucky if we can get Reese to stay down for 1.5 hours. Well today, Reese slept for 3.5 hours. Another indication her little body was fighting this virus.

When I returned home, from getting my hair done, Reese was awake and happy but my mom informed me that she was extra clingy but was able to eat some hummus and crackers. When I inspected her body again, the rash had spread and was worse in some areas.  I again, called the nurse and this time they were able to give me some things to look for, although they still thought it was a virus. She instructed me to contact them again if she got another fever, or her skin began to peel, or blister to contact them. She told me I could soak her in a cool bath of baking soda but avoid soap as it is an irritant. She also told me I could use Hydrocortizone Cream 1% as a topical.

Then I asked the question about the type of virus that is not safe for pregnant woman to be around. She told me that was called the "fifth virus".  The unborn baby can contract this and it can cause complications! GREAT!  She said one of the symptoms of that virus is bright red checks (which Reese doesn't have) but to be safe I should call my OB. Apparently there are some blood tests they can run to see if I've been exposed or to see if I have enough antibodies to fight the virus.  However, she didn't want to alarm me and didn't think this was the same virus.

Then about 15 minutes later the nurse called me back to say she thought I should call the pediatrician tomorrow and insist the see Reese, explaining that I'm pregnant and we just want to make sure it is what they think it is. She also told me to call my OB and see if they want me to come in. I'm alarmed!

So tomorrow I will most likely be in two different doctor's offices trying to figure out where this strange rash came from and which Virus it is related too.

To be continued.....

Friday, May 4, 2012

The cat is finally out of the bag....

We are so excited to announce that McClain baby #3 will be here by Nov. 7, 2012. God is good!! We have contemplated another child since Reese was born, finding out that we now have two special needs children with complete different capabilities and obstacles. We wondered if we would ever be able to add to our family or if we would even want to.

I'm happy to say after a year of praying and talking about it, we knew that we weren't quite done. We didn't feel complete and wanted to see if the Lord would so graciously give us another baby. Well he was listening loud and clear because we were able to conceive right away. Of course we have our concerns and normal fears but we are trusting that the Lord will give us the perfect child just for us.

Last week we met with a genetic counselor (for the 2nd time) and she gave us different options in pre-screening for Trisomy 18, 13, and 21.  Although statistically our odds of having another child with any type of Trisomy are 1%, you can imagine we don't put much stock in odds since both of our girls were in the 2%-4% chance of being born with CP and DS.

We opted for the NT scan and some new blood work that is as accurate as an amnio but not invasive.  Bottom line, we just want to be prepared. If this child is going to need extra care, we are fine with it but we just don't want to be taken off guard again. Twice is enough to have to go through that type of shock.  So in about a week we will have the results back from the blood work.  We are trusting and praying that this baby will be completely healthy.  It's just hard sometimes because the devil is very good at getting in there and planting that tiny seed of doubt.

However, the NT Scan went great. That is basically where they measure the fluid behind the baby's neck (this can be an indication for a chromosomal abnormality). The ultra sound tech was very sweet and explained as she saw my worried face as she was measuring the fluid -- "We consider anything below 3 (cm or mm, not quite sure) to be normal, and your baby's is under a 1." Praise God. That's not a total accurate diagnosis but it's good news for sure. We'll know more after our 20 week ultrasound but for now we are just waiting for those blood test results to rule out any of the Trisomy's.

We ask you as our friends and family to please keep us and this baby in your prayers. I know there is power in prayer. The more folks we have praying for the health of this baby the more likely the prayers will be answered. Thank you in advance. I will keep everyone posted as we progress and the baby develops.

Psalm 139:14

I praise you, for I am fearfully and wonderfully made. Wonderful are your works; my soul knows it very well.

Coming soon....